Heterotaxy syndrome is a congenital condition that disrupts the normal left-right asymmetry of the body. This can result in any of the internal organs being misplaced, malformed, multiplied, or missing entirely. This disruption in asymmetry ensures that no two cases of heterotaxy are exactly alike.
The cause of heterotaxy syndrome is not fully understood; some genetic links are being explored, but not all cases have been found to have a genetic cause, so research is still needed.
Individuals with heterotaxy syndrome require lifelong multidisciplinary care and medical monitoring.
Heterotaxy syndrome is an extremely rare condition hence is grossly overlooked. Donations to the Heterotaxy Connection help fund programs for families just receiving a diagnosis of heterotaxy for a loved one, donations also help with gifts to families mourning the loss of a loved one with heterotaxy. 10% of all donations the Heterotaxy Connection receives will go towards developing and funding research aimed at bettering their understanding and treatment of heterotaxy and issues commonly associated with this syndrome.
At Kid & Kaboutle, we are doing our part and getting involved for the families. We are also compelled to join the effort for one such family that came into our lives unexpectedly...
Please note: Kid & Kaboutle is honored to support the Heterotaxy Connection, in turn, to assist families that are impacted by the Heterotaxy Syndrome. However, we are not affiliated with the foundation. We give in support and with love when we make a sale, the more sales we make the more we will be able to give.
*We invite you to purchase with a purpose and help spread the love*
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